| Relieving
Pain - DIY Guide
As
a doctor who has cared for the dying I have often been asked to
kill people. One reason is that the fear of pain is usually greater
than the fear of death itself. All of us have relatives or friends
who have died of cancer, and many of us have traumatic memories
of a painful deterioration. What is scandalous is that in almost
every case their suffering was largely preventable and unnecessary,
inflicted not by the disease but by shocking medical ignorance,
arrogance, complacency and pride.
Dr Ilora Finlay, Consultant in Palliative Medicine
in South Glamorgan estimates that of 155,000 who died of cancer
last year in her area, 70% were in pain at some time. She says that
one in four cancer patients in the UK die without adequate pain relief - some 30,000 people a year.
Despite these ghastly statistics the search for a
pain-free death has not been led by doctors but driven primarily
by angry and frustrated relatives. Consumer pressure is the reason
for the explosive growth of hospices from just 39 in 1977 to 208
today with 384 community care teams.
Care in these units is usually magnificent, but cancer
treatment in the NHS is still far too obsessed with cure, and has
fuelled the campaign for euthanasia. So what can be done? Here is
a cut-out DIY guide to getting your own pain relief if you or someone
you love has cancer pain.
1. Don't accept pain as inevitable.
Many people put up with pain because they expect cancer
to be painful, or because they are afraid to tell someone because
of what the pain might mean, or because they don't want to make
a fuss.
2. Pester your doctor.
Many doctors are slow to take pain seriously. They
fail to ask about it, and are themselves afraid to use powerful
painkillers. My experience is that some are also unwilling to learn.
After reading this you may know more than some of them do.
3. Insist on morphine if pain
persists.
If I had cancer pain unrelieved by normal remedies,
regardless of whether doctors expected me to live five months or
five years, there is only one kind of medicine I would be interested
in taking and that is morphine or a similar drug (an opiate), together
with other approaches such as radiotherapy for bone pain and nerve
blocks.
4. Enjoy proper pain relief
without addiction or danger
A recent Gallup Poll on morphine use in cancer found
that 72% think it is addictive, and 74% dangerous, but opiates are
not addictive when given for pain and do not shorten life when properly
used. They merely replace naturally occurring endorphins and enkephalins
which are low.
For example if you give an injection of diamorphine
(heroin) to someone who is fit, well and comfortable, the result
will be a "rush", a high, a feeling of exhilaration and intense
pleasure which is dangerous because it creates a craving for more.
With regular drug abuse the brain shuts down its own production
of endorphins and enkephalins with very unpleasant results, seen
in symptoms of "withdrawal".
However if someone else is rushed to hospital with
a broken leg, and the same dose is given, there is no high and no
withdrawal, just analgesia. This explains why it is possible to
maintain someone with chronic cancer pain on the same dose of opiates
for months, and why, if there is a complete remission, the opiates
can usually be stopped without a problem.
5. The right prescription for
you is that which relieves pain throughout the day and night without
unacceptable side effects.
Many doctors have a set dosage in their minds - say
30-60 milligrams of morphine every six hours. This is a hopeless
approach. For a start the blood-brain barrier is different in each
person so that in some only a fraction of the original dose actually
reaches the pain receptors. Others have a liver which devours the
drug rapidly, or a gut that only absorbs part of the dose. Others
have receptors that are insensitive, and the illness itself may
progress.
The person in pain is the one usually in the best
position to judge when the dose is right, rather than the doctor.
One person may need fifty times the amount of another and yet still
be alert and active on a regime that would kill most healthy people.
Many doctors fail to realise that ordinary morphine
needs to be taken every four hours because the drug is destroyed
so fast by the body. However a convenient alternative is a slow
release tablet or liquid which lasts a full twelve hours, especially
helpful at night. The aim is to enable people to forget about pain,
which is emotionally wearing, so that they can get on with living.
For example, in the Lancet this week is a study showing that those
on stable doses of morphine are safe to drive.
6. Get expert advice
It is your right to expect proper pain control in
cancer treatment, so go on asking for it and change your doctor
if necessary. A useful support in negotiating with your doctor can
be a Macmillan, Marie Curie or Hospice nurse. These specialist advisors
cover almost the entire country, not only for pain control, but
also for the relief of other distressing symptoms and for emotional
support.
I remember visiting a sixty five year old man with
lung cancer who was at home with his wife. He ushered her out of
the room and asked me to put an end to it all. He was in some distress
with discomfort, lack of sleep, immobility and feelings of guilt
at being such a burden on his family. It was the first time we had
met.
I was able to promise him proper medication which
he could control himself, a good night's sleep, greater mobility,
practical help and emotional support as a result of which I hoped
he would be able to enjoy the time he had left. He died peacefully
from his illness a few weeks later. Euthanasia was never mentioned
again. Why ask a doctor to kill you when you can have life worth
living?
The real answer of course is better training at medical
school and retraining for senior doctors, but old habits die hard.
In the meantime those in pain need to take matters into their own
hands and insist on better care, empowered by the knowledge that
much more can be done.
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