|
FINALLY: TIME
FOR ACTION
GUIDE TO AIDS NGO PROGRAMME DEVELOPMENT
- HOW TO START
Extract from Aids and You - book by Dr Patrick Dixon,
published by Kingsway 1989, 1990, 2002
Introduction: Christians
are Leading the Fight Against AIDS
- Chapter 1:
AIDS is Your Problem Too -
Chapter 2:
Vaccines, Treatments and Condoms
- Chapter 3:
Agony AIDS - Questions People Ask
Chapter 4:
Nowhere to Go - Chapter
5: What Do You Think? -
Chapter 6: Where
Are You Going? - Finally:
Time for Action -
ACET International
Alliance
Also read The
Truth about AIDS - free online book with much more AIDS information:
- Latest
AIDS statistics, AIDS information - Africa AIDS Crisis - History
of AIDS - AIDS epidemic, India, Asia, Eastern Europe, Central
Europe, Russia, America, China
- AIDS
research - causes of AIDS - AIDS treatment - retroviruses - protease
inhibitors - cure? Antiretroviral therapy for HIV
- HIV
transmission, AIDS risk factors and HIV window period
- What
is AIDS? - HIV symptoms - AIDS symtoms - symptoms early HIV infection
- early signs infection
- How
reliable are condoms? HIV dating - reducing HIV transmission
- Life
and death issues - HIV medicine
- AIDS
FAQ - vaccine, treatment, AIDS testing, Africa, China, Children,
workplace discrimination, AIDS myths, origin of AIDS
- Moral
dilemmas - euthanasia and AIDS treatments
- AIDS
and the church - when church members need help
- Community
care - treatment, adults, children, orphans
- AIDS
education - AIDS awareness in youth and schools
- HIV
Prevention - needle exchange program and condom distribution
- AIDS
in Africa and HIV in Africa, HIV infected surgeons
- Ten
point AIDS management plan for governments
- A global Christian challenge - church response to AIDS
- Guidelines
for best practice in running HIV / AIDS programmes in developing
countries, plus many helpful case studies and stories (Africa
/ India / Asia)
- A Christian
response to AIDS - global AIDS challenge to the church (article
for Tear Fund)
What should we do about AIDS?
Personal and Project Responses
Living
life to the full
You are important. I believe you were made for a purpose
and that you will find your greatest happiness finding that purpose
for yourself. Part of that involves starting to live for others.
Jesus said that the only way you could find your true self, that
is becoming trully human, is by losing yourself - not by becoming
a passive doormat that everyone else can tread on, but by letting
go of the right to run your life your own way, and instead inviting
Jesus to show you how to live his life. I believe God has a plan
for you and that because he loves you, his plan is the one that
will make you truly happy.
The most important part of that plan is that wants
you to know him personally, not as a 'human being', but as your
friend, and that he wants to you have new power, strength and inner
resources so that you can live life to the full. Often this brings
healing and sometimes physical healing as well.
Getting
involved
Secondly, there is some action you can take will be
of practical help to those who have AIDS. You might want to become
a volunteer, to offer, to visit someone who is ill, or to help support
their family. Or you might want to help save lives by telling people
how to protect themselves against HIV. Why not talk to others in
your church, or to other people involved already in a Christian
response to AIDS, and offer time to them. You will find many resources
to help you on the ACET International Alliance website. You can
download them and print them out.
What
can be done? (Return to Index)
Start with what you have. I recently visited a school
for AIDS orphans and an income generation project started by six
grandmothers in a very poor area of Uganda. They started with what
they had and got on with it themselves, gradually mobilising others
in the village and little by little the work has been established.
The saved up and bought some land. Then they saved to buy a cow.
The milk from that cow pays to run the school. Gradually they made
bricks and replaced straw roof on poles with a small building. And
then they built another. They started to teach the children as best
they could in their own spare time. Everyone was helping. Some brought
food, others cooked, others carried water each day so the thirsty
children could drink. The grandmothers realised they needed some
training and went off to government programmes to get a basic qualification.
A visitor came and gave them money to get electricity. Another provided
a pipe for running water. Another gave them a sewing machine to
train older girls. and gradually the work has grown.
Every church can encourage members to do something
to help. As George Hoffman once said, the founder of Tear Fund:
"You can't change the whole world but you can change someone's world
somewhere.
 |
Go and save
someone's life today. |
 |
Go with food
to a family stricken by AIDS today. |
 |
Go and comfort
a widow or an orphan today. |
 |
Go and encourage
someone who is giving their lives to AIDS ministry today.
|
 |
Pray for God's
protection on them and for God's provision. |
 |
And you may
be part of the answer to those prayers ! |
,
Good Practice in HIV/AIDS Projects
This section is written by Mark
Forshaw - Africa Inland Mission International
What can we do? How can you and I make a difference?
Firstly, always start with what you already have. It's
a scriptural principle. God's work done in God's way never
lacks God's supplies, as Hudson Taylor, the famous missionary to
China once said. So what is God calling you
to do? What has he laid on your heart?
,
You need neither funds nor a large team to start. It costs
nothing to care for a friend or neighbour, nor to talk to your own
children and colleagues about HIV and AIDS, nor to include HIV issues
in your church teaching programme, or work training schemes, or
school curriculum. Together we can make a real difference.
,
You may not be able to save the whole world but you can save someone
getting HIV somewhere. You may not be able to help all those
with HIV or orphaned by it, but you can give practical help and
encouragement to a few, and you can get involved in other projects
that are already running. But do it all in fellowship with
others. Such work can be stressful, draining and lonely
and you will need people supporting you too. ,
,
What about larger projects? Thousands
of programmes have been developed, countless papers published
and millions of dollars expended in the struggle against HIV/AIDS.
Yet spread of the pandemic rapidly continues. Many governments
and NGO agencies now recognise that their strategies are failing
to stem the tide, yet continue to pump money into condom distribution
alone and one-off awareness campaigns, neither of which address
related problems such as poverty, education, the rights of women,
and broader lifestyle questions.
Here are some stories to encourage you: remember these
are lessons from different countries which need careful adaptation
to your own situation. However the Case Studies illustrate
many general points which are vitally important.
Every one of these stories has a small beginning.
An individual touched by the love of God, and deeply affected by
what AIDS is doing to the world He made. People who felt they
had to do something,
and who began, usually with almost nothing, step by step, following
God's calling, in fellowship with others and learning from those
around them as they went. In many cases the road was long
because there were few role models for such programmes at the time.
But now the programmes they began are an inspiration and practical
encouragement to us, and accelerate us on our own journeys.
Care Case Study - FACT Zimbabwe
In the face of a high level of need and limited
formal health resources, those who began FACT (Family AIDS Caring
Trust) in Mutare, Zimbabwe, saw the pressing need to mobilise the
local community to provide care. Churches were approached who had
individuals willing to be trained to provide care to families and
neighbours in their communities. FACT home care programmes are co-ordinated
by experienced health workers who are responsible for local teams.
Each team is headed by a volunteer, managing other local church
volunteers who provide the actual care to those in need in their
areas.
The training of volunteers consists of basic counselling
and care skills. Care skills required for people ill at home are:
bathing and personal hygiene, washing clothes and bed linen, house
cleaning, provision of appropriate food and the treatment and dressing
of minor wounds. While the main aim of the volunteers
is to attend to those infected with HIV, they are trained to care
for all who are chronically ill or dying, e.g., people with TB,
diabetes or simply from old age. It felt wrong to visit only
those who were ill due to HIV while not caring for their neighbours
who were equally ill but not necessarily HIV positive.
Above all it is necessary for volunteers to recognise that the
needs of those they visit are not purely physical, but also emotional
and spiritual. Volunteers are drawn from the local community and
it is often their neighbours they are caring for. The formation
of serving relationships are the basis for good practical care
and supportive counselling.
The majority of those visited are living with members of their
families and the role of the volunteers is also to support them.
They offer advice on ways to deal with different infections common
to HIV; other informal and formal services available and
how to access them. Importantly the volunteers also offer emotional
and spiritual support to the family carers.
Through this relatively low skill and low cost team a larger
number of people are able to receive help, utilising the traditional
family and community caring mechanisms. Through volunteers,
each church is able to reach into its community to serve and support
families, neighbours and other carers. Volunteers contribute to
programme development with data collection and in decision making
and planning meetings. This is a good practice: involve people
who are closest to those who need help.
Home care helps those most in need of assistance in their own
areas. However providing practical care alone only meets physical
needs. There are also very real emotional needs as people face
prejudice and rejection, and spiritual needs as they are facing
death. Care must therefore encompass counselling of the individual
by appropriately trained and supported workers.
For Christian organisations, home care and counselling can be
opportunities for finding faith, as people with no human hope
discover eternal hope through Christ. Care for a PWA is a powerful
way of sharing the love of Christ practically within the community
and sometimes this can lead to naturally sharing Jesus, our motivation
for caring.
Basic physical care of sick people is an obvious need that must
be met. Destigmatisation, normalisation and inclusion by family,
friends and community are also all needs though less immediately
obvious. They can all be achieved by low-cost, yet trained and
caring volunteer home visitors, who are themselves, well supported
and managed.
The relational-based care offered by the volunteers
naturally opens up opportunities to raise awareness and understanding
more widely about HIV/AIDS and especially how it is transmitted
and prevented. HIV/AIDS prevention that develops out of the
context of care often makes it easier to talk about sensitive social
and moral issues People whose friends or family are infected
are facing the reality of the disease and therefore tend to listen
and subsequently pass on information to others. For an AIDS
organisation working in prevention, one of the best entry points
is care, which most often also brings credibility to their work
,
Summary on Care
 |
Community
based care reaches more people |
 |
PWAs often
prefer to be cared for in their own homes |
 |
Be prepared
to care for those with many different illnesses, not only
those living with HIV/AIDS |
 |
Families,
friends, communities and volunteers are a resource for care |
 |
Communities
must own the work and so must be consulted from the beginning
and throughout the life of the programme |
 |
Care in the
community, provides opportunities for prevention education |
 |
Community
based care is most often cheaper than hospital based care. |
 |
Care should
be holistic: physical, emotional, social and spiritual |
 |
Effective
care in the community is best linked to other services and
works in partnership with them e.g. local hospitals |
 |
Communities
have many resources within them that can be drawn upon |
Summary on use of Volunteers
 |
Ask the question:
is the use of volunteers appropriate, how, where and to
what extent? |
 |
Selection
criteria must be established at the start. Motivation is
key. |
 |
Relevant
training at the start and throughout the programme |
 |
Monitoring
and support of volunteers throughout the programmes life |
 |
Involvement
in decision making and planning. |
 |
Clear parameters
for volunteers on what is expected of them and when they
should refer to paid staff. |
 |
Regular group
and individual monitoring and support of volunteers by the
organisation. People are our greatest and most precious
resource. |
,
Issues in Counselling
 |
A central
part of care and prevention. |
 |
Training
is critical. |
 |
So is supervision
and clear boundaries i.e. Know when to stop and who to pass
issues to. |
Prevention Case Study - ACET Uganda
The aspiration in all HIV/AIDS care and prevention work should
be the reduction of the spread of HIV. Here is the
greatest challenge to those in HIV-related work: are you
spending as much effort and resource on saving lives, as in caring
for those affected. You only have today to save someone's
life and the next 10 years to plan their care. We must do
all we can to fight this terrible problem. Care programmes,
while vitally needed, are no answer on their own to the spread
of AIDS.
But changing behaviour is a real challenge. HIV/AIDS awareness
campaigns and education alone have limited impact in changing
high risk activities of individuals. Information received by an
individual does not necessarily mean that the individual understands,
relates to or wishes to change their behaviour.
ACET Uganda has developed a three- pronged approach to communication
to assist effective and sustainable behaviour change.
People must know the facts. This must be designed to meet individual
and local needs. It must be able to fill gaps in information and
lay a foundation for understanding the medical, social, economic,
cultural and spiritual issues related to HIV/AIDS. But facts
alone will rarely change behaviour.
Identification:
Assisting individuals to understand high-risk behaviours
that they are, or could be, involved in. Help people make
important lifestyle choices to be made based on understanding the
options and consequences of particular behavioural practices.
This method is in contrast to the "Fear Method" of many
HIV/AIDS campaigns.
Interaction:
Having been shown the choices, the individual is then encouraged
to think through the options. These relate to life-skills
that reduce vulnerability to infection, enabling long-term fulfilling
relationships, taking personal responsibility for their behaviour,
having confidence to make and live by their own decisions, and
respecting the worth of others.
As ACET Uganda developed its HIV/AIDS prevention work it soon
became apparent that HIV/AIDS could not be dealt with in isolation
and it was necessary to deal with general sex education and, importantly,
the development of an individual's relationships through developing
personal self-worth and a high regard for others. These are skills
that are critical not only to HIV/AIDS prevention but also to
the general development of every individual.
ACET Uganda describes lifeskills as "formal and informal
teaching of requisite skills for survival, living with others
and succeeding in a complex society. It can no longer be
assumed that these skills are automatically learned or that they
are automatically passed on, as was in times past."
(Lifeskills Education for Responsible Behaviour among Adolescents,
ACET Uganda) Many existing cultural teachings may not prepare
people for new pressures.
For example, with the increased urbanisation, people are facing
new economic and social pressures, while traditional social structures
are breaking down. Development of life-skills by people
(in particular those most vulnerable, such as young people and
women) can equip them to respond more positively to the challenges
that they face in life.
How life-skills are learned
ACET Uganda uses interactive teaching methods to provoke people
to think and discuss issues that affect them, assisting them to
analyse situations they will face and their responses.
Peer pressure is very effective in developing individual thinking
and social understanding. This can be both negative and positive.
The role of the education team is to develop peer-group thinking
that will help reinforce and sustain of positive and healthy behaviour.
 |
Focus group
discussions. |
 |
Debates and
Panel Discussions. |
 |
Films, reels,
slides and video. "Do not expect films to speak for
themselves" but they can form the stimulus for good
discussions. |
 |
Questionnaires.
|
 |
Talks, not
long lectures, but short and dealing with contemporary issues |
,
There are common principles for educators/facilitators
to employ during the learning process:
,
 |
The issue
is not primarily raising awareness, but assisting personal
and community behaviour change. |
 |
Attention
to vulnerable groups, in particular women and young people.
Research their needs. |
 |
Commitment
to people. |
 |
Respect for
the listener and their views. |
 |
Co-operative
not competitive learning. |
 |
Importance
of peer education. |
 |
Interactive
methods of learning. |
 |
Time for
reflection. |
 |
Clarity of
the message. |
 |
Relationship
building. |
 |
Training
of others to assist in the process e.g. peer educators. |
,
The Gospel - a framework for life.
,
For Christians involved in lifeskills education the gospel can be
brought in naturally when appropriate, for many it offers them a
framework for life. It is the news of Jesus Christ who can
help people face the challenges of life. It may not always
be appropriate to be evangelistic, but often educators are asked
where they receive the strength and purpose to face life's challenges
and can legitimately testify to their faith.
,
The integration of HIV/AIDS Prevention
with other issues.
,
Addressing HIV/AIDS prevention education should form part of a more
comprehensive teaching on lifeskills. The educators of ACET Uganda
have gained credibility, in part because they are dealing with many
of the other pressures people are facing. For other organisations
such as FACT, involvement in the care of people living with HIV/AIDS
has given them the basis and opportunity from which to undertake
prevention education.
Church Mobilisation Case Study
- Chinkinkata Hospital
A church which serves the community
It is of course important that the church serves the local
community. But part of serving means handing power and decision
making to the community, and even to people living with HIV/AIDS.
The central verse in Mark's gospel, Mark 10 verse 45 describes Christ
as a servant "For even the Son of Man, did not come to serve, but
to serve and to give his life as a ransom for many" Not only a servant,
but a servant who gave his life.
,
The Salvation Army hospital at Chikankata, describe their education
work 'community counselling' as "an activity expressed through
dialogue, directed towards genuine transfer of responsibility for
prevention - from health personnel and other concerned 'helpers'
to individuals, families and perhaps most importantly, communities"
(AIDS Management An Integrated Approach Campbell I.D, Williams G).
Such a community wide interactive approach is essential in the context
of AIDS in communities with high rates of HIV infection. The task
of prevention is very great and communities must own the desire
to change. Instruction alone is not enough. They need education,
information and training from people they respect. The church must
serve in order to mobilise the community.
,
The Word of God The size and moral nature
of the epidemic has left many programme implementers uncomfortable
with the slow pace at which the church, missions and Christian NGOs
have responded. Church leadership is key in the mobilising of HIV/AIDS
programmes. If church leadership remains unmotivated or, worse,
prejudicial about church involvement, time needs to be invested
to help influence a change in this attitude before sustainable action
is expected from a church or group.
,
When you have support and encouragement of the church leadership
the resources within the church can easily be mobilised. The key
appears is the power of the Word of God with the Holy Spirit to
motivate, to care, and to give people a framework for life. Christian
care must model that of Christ, which was not restricted to the
physical needs of people, but went way beyond this to their emotional,
relational and ultimately spiritual needs. Christians have an opportunity
through HIV/AIDS care and prevention education to practically express
the love of Christ for the marginalised, but also for all in the
community living under the threat of AIDS.
Mobilising a Church Case Study
- TAIP, Jinja,Uganda
Under the leadership of Pastor Sam Mugote a number
of the members of Deliverance Church, Jinja, formed a group to offer
physical and spiritual care to people in their community living
with HIV/AIDS. They were motivated by the many needs of their neighbours
but also by the call of God's Word to care sacrificially for those
in need, without prejudice or judgement. The programme grew through
other churches seeing the positive impact upon the lives of individuals,
the community and the church itself, and requesting to become part
of the programme or to be allowed to replicate the work. The
Deliverance Church formed TAIP, The AIDS Intervention Programme,
to enable and assist churches to respond to the HIV/AIDS epidemic
in their communities.
,
The aim of TAIP is to assist churches to develop sustainable support
to people living with HIV/AIDS. Churches are facilitated to plan
and manage both care and prevention programmes through volunteer-based
work to their immediate communities. The foundation for these
programmes is a spiritual premise that Christians should take initiatives
in the HIV/AIDS epidemic.
,
The implementers of the care and prevention work are individual
volunteers from churches. The majority of them are untrained
in formal health care, but have been equipped to provide the basic
physical care that people living with HIV/AIDS need in their homes.
Furthermore the volunteers are trained to provide counselling intended
to meet the emotional needs of both the PWA and their families.
They also offer advice on nutritional matters and other services
available to individuals and families. At the heart of the
provision of this practical care the love of Christ is shared.
,
Generally, the TAIP team works with churches that approach TAIP
for guidance. In the words of Pastor Sam Mugote, he sees the
role of TAIP as assisting Churches "to develop work that churches
are already doing ", that they care bout people and the Biblical
model for life.
,
The churches that seek assistance and are selected to receive training
share two key qualities. Firstly, they
see the need of people in their community infected by HIV and the
effect this has on their families and community. Secondly,
the church is active in the verbal and practical proclamation of
the gospel i.e. has recognised and is already practising a response
to the call of Gods Word to tell people of the good news of Jesus
Christ in word and deed. These are fundamental building blocks,
without which it is difficult to then start an HIV/AIDS programme.
The role of TAIP is to offer guidance on how a congregation may
direct their vision and skills to offer effective care and prevention.
,
As stated above the experience of TAIP is that a local church must
already show evidence of commitment to and practical outworking
of, the biblical teaching cited above. From this starting point
it will be more of a natural development for churches to then make
a local response to the HIV epidemic. ,
The TAIP team begin by making an initial visit to a church to
meet with the minister, church leadership, and interested individual
members in the congregation. It is important that the leadership
not only agrees to the development of a programme but is also
actively involved in the work. The church may meet a number of
challenges through which the active support of leadership is needed.
Volunteers may face prejudice and will certainly need regular
support and understanding when involved with chronically ill people
and their deaths. The TAIP team train motivated and
selected members of the church to become a Support Action Group
(SAG) to visit people with HIV/AIDS. This group of volunteers
is also equipped to be able to review its activities and support
one another by meeting together regularly.
The emphasis of the TAIP training and of the SAG volunteers is
to develop relationships with individuals. This meets one
of the central needs of people, to realise that they are loved
and have worth and it is from this base of emotional support that
the other elements of care can be supplied.
It is important to note that the experience of TAIP has been
that the mobilisation of a church can take between six and eighteen
months as volunteers are selected, trained and learning practically
applied between training sessions. Training is then followed
up by supervision, support and update training visits by TAIP.
Another important factor in the development of the church's programme
is clear liaison and communication with the local community.
The community should agree to and own the initiative and this
will often require time and resources dedicated to developing
relationships, even training in the development of surveys and
planning with communities.
It is the experience of TAIP and other organisations that volunteer-based
projects can be developed with less difficulty in rural areas
compared to urban areas. The main reason for this is the availability
of volunteers with time to care for people outside of their own
families. In urban areas there are often reduced family structures
and the need to earn a wage can severely restrict the time volunteers
have to offer. A solution has been to mobilise those who do have
some available time. Furthermore training has often concentrated
on the training of families to provide more of the care needs
of people living with HIV/AIDS.
TAIP have seen that a programme developed naturally by one local
church provoked other neighbouring churches to catch the vision.
Summary on Church mobilisation
 |
Biblical
lifestyle of the church members must be in evidence |
 |
Leader must
be supportive and involved |
 |
Quality and
relevant training |
 |
Regular support
for volunteers |
 |
Emphasis
on developing relationships with PWAs and the community |
 |
Include support
for families |
 |
It can take
up to eighteen months for an effective programme to develop |
 |
Clear liaison
and communication with the local community |
 |
More difficult
to develop in urban areas |
The following biblical texts are drawn upon by TAIP. We can see
their relevance for today, especially for those infected and affected
by HIV/AIDS.
Called to care 2 Corinthians 1, verses 3 and 4. "Praise
be to the God and Father of our Lord Jesus Christ, the Father of compassion
and the God of all comfort, who comforts us in all our troubles, so
that we can comfort those in any trouble with the comfort we ourselves
have received from God."
We have been given much by God and we have the responsibility
to reach out to others in practical, caring compassion.
The example of Jesus Mark 1, verses 40 to 45. " A man
with leprosy came to him (Jesus) and begged him on his knees, 'If
you are willing you can make me clean.' Filled with compassion,
Jesus reached out his hand and touched the man. 'I am willing he said.
Be clean!' Immediately the leprosy left him and he was cured."
We may not be able to touch and cure, but here we see that Jesus was
filled with compassion for a person who in the times of the New Testament
was not only afflicted by a disease, but suffered the prejudice and
rejection of the community. Lepers were even seen as cursed,
yet Jesus talked with this man and touched him.
The call to be non-judgmental John 8 verses 2 to 11. The woman caught
in adultery, and the judgmental attitude of the religious leaders
of the day. verse 7 - " If anyone of you is without
sin, let him be the first to throw a stone at her."
No one did, including Jesus who was without sin. Should we not follow
this example and show compassion and not judgement or prejudice against
people with HIV, whether they have innocently contracted the virus,
or not?
The call to serve practically and sacrificially Luke 10 verses 25
to 37. The parable of the Good Samaritan. , ,
Mercy was shown to a man, who was most probably a Jew, by a Samaritan,
the Jew's enemy. Yet the Samaritan gave time, his donkey, his
medicines and money to care for the injured man - he showed mercy;
Jesus says to us " Go and do like wise" verse 37.
The call to advocacy and care for the marginalisedIsaiah
1 verse 17 "Seek justice, rescue the oppressed, defend the orphan,
plead for the widow" The language is strong, proactive and action
based.
The church has a message that offers the framework for life HIV/AIDS
prevention education should be part of a wider teaching on lifeskills
that equips individuals to develop themselves and to counter pressures,
including those that lead to increased vulnerability to HIV infection.
The Word of God offers the framework for life and for hope; the church
is obligated to tell others. This includes assisting members of communities
in developing safe behaviour that can prevent the spread of HIV.
The AIC (Africa Inland Church) Kenya AIDS Team has developed, to great
benefit, materials that utilise the Bible for guidance in HIV/AIDS
prevention, sex education and relationship development. Utilising
materials from other parts of Africa and so "not reinventing the wheel"
they have worked not only with local churches, but in their associated
schools and importantly in Theological colleges, where the church
leaders of tomorrow are equipped with Bible based skills and resources.
, ,
A people of prayerEphesians 3 verses 14 - 21 includes verse
where Paul prays "that out of his [God's] glorious riches he may strengthen
you with power through his Spirit in your inner being". Prayer for
people infected and affected is essential. And prayer support for
those involved in the work is also essential. This work is draining,
physically, emotionally and spiritually, God's help is needed at every
step of the way.] - edit if desired
Community based response to HIV/AIDS Case Study - Chinkinkata Hospital
Zambia With the advent of the HIV/AIDS epidemic in southern Zambia,
the response of Chikankata Hospital (Salvation Army) was to develop
designated AIDS wards and comprehensive community and prevention services.
However, it soon became apparent that there were too many people for
the in-patient services to handle, and that many of the needs should
and could be met by care services based in the community. Therefore,
in1987 a Home Based Care (HBC) programme linked to hospital diagnosis,
counselling, education and treatment was established.
This programme allowed people to be cared for in their own homes,
and created opportunities to train families in the care of people
living with HIV/AIDS (PWA) and discuss HIV/AIDS education and prevention
with families and the wider community. The HBC teams are multi-disciplinary
and include community nurses, nutritionists, and counsellors.
The HBC programme at Chikankata soon developed into a comprehensive
HIV/AIDS programme including: in-hospital counselling AIDS education
schools, child support programmes and technical assistance programmes
for other organisations. Chikankata has developed a diverse but integrated
approach to supporting the local community in combating HIV/AIDS.
The programmes that are developed are tailored to meet the needs of
different sections of the community.
Local communities in co-operation with Chikankata hospital have
developed successful programmes providing care for persons with HIV
infection.
These community-based programmes belong to the community that
benefits from the services, not to the aspirations of an NGO or health
care institution. The community is not necessarily restricted to a
geographical area, but rather the term 'community-based' denotes that
the local community owns it. The result of the link between home care,
prevention and general community development has been an investment
in a community not so readily achieved through hospital in-patient
care. Furthermore, home care proved to be 50% cheaper than inpatient
care. But to obtain such savings requires good planning and management.
Community based care, still has many costs attached, including the
training and support of volunteers.
Holistic care, whereby the physical, social, spiritual, economic
and psychological needs of both the individual and the community are
met, is of paramount importance to the team at Chikankata. Such
diverse needs can only be met by working with all those that contribute
to a community, that is, individuals, families, communities, government
institutions and the NGOs working together.
However, the expectations of many in the communities in the
Chikankata area were increasingly that the Hospital, and not themselves,
would meet many of their needs. And not only those related to HIV/AIDS,
but often those related to other aspects of their lives, such as income
generation, food production and schools.
The management of the hospital recognised that the use of paid
hospital- based community care teams was expensive and that they were
increasingly unable to meet the growing workload as HIV prevalence
increased. One manager said the community health care structure was
being used as a 'Neighbourhood Watch Scheme' that the community used
to ask for help on a wide range of community issues.
The response of the hospital management was to meet with the
local leaders and communities and share their concerns that they could
not continue to meet all the demands being made upon them. The result
was the development of Care and Prevention Teams (CPTs) which are
run by the community and not the hospital.
Care and Prevention teams have the following components:
, ,
 |
Community elects
the CPT committee members |
 |
The CPT address
not only health issues but general development matters |
 |
Local key stakeholders
are invited to join the committee e.g. Volunteer Health Workers,
business men and women |
 |
The local church
is not forced to join, and is encouraged to take on a servant
role, rather than leadership role based on prescriptive authority.
To be a servant is to be lower than the one we serve, to show
the sacrificial love of Christ. |
 |
Hospital-based
staff work as team members |
,
The CPT works with their communities to highlight and rank them according
to their perceived importance. This is followed by an identification
of available resources: environmental (water, roads, trees, fertile
land), services (hospitals, clinics, donors, banks, schools, NGOs)
and human resources (teachers, farmers, politicians, committed individuals).
A shortage of money does not mean a shortage of other resources.
, ,
 |
The CPT and
community agree on a management structure and plan of action
to provide most of the resources and activities required to
respond to the community. |
 |
An influential
individual from the local community, or someone particularly
committed, is selected by the community to act as the main
motivator and link person. |
 |
The CPT then
negotiates with the hospital staff to agree the assistance
that can be offered by the hospital to support the community's
efforts. This could include regular monitoring and evaluation. |
 |
Above all,
the CPT strategy encourages the community to take on responsibility
for the provision of caring for fellow members of the community
who are chronically ill (not only those ill due to HIV/AIDS).
Furthermore, care is not restricted to those who are ill,
but also those affected by the illness, that is, of dependants,
most often children and elderly parents. |
The CPT is not only concerned with the provision of HIV/AIDS
care, but also the prevention of HIV/AIDS. And their focus is on
behaviour change. As care of individuals is provided, opportunities
for raising awareness and then addressing the underlying issue of
behaviour change in the lives of individuals and communities (see
below).
To quote Dapheton Siame a member of the Chikankata management
team
"This is not a new way of working, but finding again our
old ways of [community] working".
Why HIV/AIDS is a major development issue HIV/AIDS contributes
to poverty and is a product of poverty. It strikes predominantly the
sexually active, who are most often the economically active, the subsistence
farmers, factory workers, urban professionals or mothers and carers
of the elderly. HIV/AIDS therefore
impacts all aspects of development from education and women's rights
to economic development programmes. So there is a need for HIV/AIDS
programmes to research and act on the context within which they work.
Likewise other development programmes must not ignore HIV/AIDS and
the devastating undermining impact it can have on their projects.
What is called for is an integrated approach. Integrated
Approach to HIV/AIDS
For example those training traditional birth attendants or irrigation
workers can highlight the need for them to address the issue of HIV/AIDS.
There is also the need for HIV/AIDS programmes to be internally integrated,
to approach the issue holistically in the case of each person helped.
Providing practical care alone only meets physical needs of people.
There are also very real emotional needs as people face prejudice
and rejection, and spiritual needs as they are facing death. Care
must therefore encompass counselling by appropriately trained and
supported workers.
Consult with, listen and act on the needs of people living with
AIDS. It is they who are most in need and who can give critical insights
to a programmes work. They need to be fully integrated into the programme
development.
Holistic care, whereby the physical, social, spiritual, economic
and psychological needs of both the individual and the community are
met is of paramount importance to the most effective of AIDS programmes.
Such diverse needs can only be met by all those effected individuals,
families, communities, government institutions and other NGOs working
together in an integrated way.
Advocacy Advocacy is often a new activity for Churches and Christian
AIDS NGOs (non-government organisations), many of which have previously
felt it best to avoid the political arena and to concentrate on care
and prevention.
However many Churches and NGOs are increasingly finding that
they must act as advocates for PWAs and communities affected by AIDS.
There are issues of justice with an absence of others to speak on
their behalf. Many churches and Christian NGOs are acting as advocates
for PWAs when they seek improved health care from clinics. But this
has not necessarily led to planned strategies of how to respond to
other advocacy needs.
Issues for advocates ,
,
 |
Develop relationships
with key people and organisations |
 |
Try not to
speak on behalf of PWAs and communities unless they agree |
 |
Facilitate
meetings between marginalised groups and people of power |
 |
Be aware that
prejudices and fears are often strong and will take time to
change |
 |
Advocacy happens
at many levels, local and national. From advocacy in a local
clinic to national church leaders creating the right national
environment for advocacy by others at more local levels |
,
Orphans Case Study - Bethany Trust, Zimbabwe One of the most heartbreaking
and also striking social consequences of the AIDS epidemic is the
number of orphans and in many cases the increase of child-headed households.
The responsibility for income and care, sometimes not only for siblings
but also for their ailing parents and elderly grandparents, is falling
increasingly on the shoulders of children.
When assisting orphans, it is not practical and rarely is it
appropriate to restrict help to those who have lost parents due to
AIDS. Be as inclusive as you are able to those orphaned from
other causes, indeed to any children in need, irrespective of whether
they are orphans or not. Very often children will be supporting parents
who are ill and acting as their carers. To offer school fees only
to those children affected by HIV/AIDS risks creating an imbalance
in the community and increasing stigmatisation and prejudice.
It is also important that programmes to support orphans always
look to the longer term future: are they going to be able to
support themselves as they grow up? Are communities going to be able
to develop their own capacity to help in a sustainable way, without
external funding?
The principle of empowering the local community to care for
their orphans has been central to the work of The Bethany Trust in
Zimbabwe. Local churches and Christians are encouraged and trained
to equip communities to care for the increasing numbers of children
in need.
Bethany will begin by discussing with communities and their
orphans their needs, concerns and what possible solutions the community
can identify for the challenges ahead of them. Volunteers are then
trained to provide emotional and practical support for orphans. This
could include guidance on planting crops to guidance on growing up.
They speak to children, listen to them and then speak up for them
when required.
But this work is not restricted to child-headed households,
but also to assisting any family that has suffered the loss of a parent.
This is particularly critical for supporting the increasing number
of grandparents who now act as sole carers for their grandchildren.
By enabling families and communities to care for orphans and
not sending them off to orphanages where they may become stigmatised
(especially if it has 'AIDS Orphanage' written over the door) the
children gain so much. They maintain their sense of belonging to a
family and a community. This has often proven to benefit children
emotionally, but also practically as they are supported in the present
and learn relevant skills to survive long term in their home areas.
[A similar methodology has also been repeated in Chikankata.
The hospital is now moving away from providing school fees for individual
orphans towards supporting the economic development of local communities
and when grants are made they are for schools, not just individuals.
These new initiatives are entitled not AIDS specific, but CHIN, Children
in Need. This is a response headed by the local communities,
that seeks to assist all children in need, not only orphans. It is
an integrated approach that mobilises communities and strengthens
bonds between children and their community. This reduces the
stigmatisation of orphans and in particular, orphans who have lost
their parents due to HIV/AIDS.]
In the past people have often built orphanages as a response
to the needs of orphans. But the Bethany Project has encouraged and
trained communities to such an effective extent that in five years
it has mobilised the care of over 6,000 orphans in the district of
Zvishavane alone. Orphanages can be seen as the last safety net, but
before that point is reached there is the existing family and community
structures to be drawn upon.
However every situation is different and in some communities
other ways to support orphans have been successfully developed in
locally sensitive and appropriate ways.
Summary on responding to Orphans
 |
Involve orphans, listen to
them |
 |
Empower families and communities |
 |
Support to all families in
need, not only those affected by HIV/AIDS |
 |
Aim to keep children in their
communities |
 |
Provide skills that will sustain
families e.g. farming and income generation activities. |
,
Refugees HIV/AIDS has been seen to spread more easily in times of
instability when social practices that often protect individuals are
disrupted or even broken down completely. This includes protective
sexual practices. In early 2002 there were an estimated 15 million
refugees in the world. Three-quarters of them in Africa and 80% were
women and children. In addition there are an unknown number of displaced
people who have been forced from their homes but have not crossed
country borders.
HIV can spread at times of social crisis and its impact is greatest
in developing countries, the very countries least equipped to combat
the crises.
In emergency situations of mass movement, HIV often seems less
important than food, shelter, water, emergency health care and security.
But what are the long-term effects of not prioritising the risks of
HIV transmission? Relief workers must ask the question, are displaced
people at greater risk of HIV infection and should this need not also
be met at the same time as the short-term issues of security, shelter
and nourishment?
Poverty alleviation and Income generation activities Where there
is poverty AIDS seems to follow close behind. And the evidence is
that AIDS thrives in areas of poverty. The red light district of Mumbai,
India is full of HIV + girls whose poverty stricken families have
sold them to the owners of brothels. Income Generation Activities
(IGAs) can be an effective intervention for the support of individuals,
families, programmes and institutions, but they must be done with
care and skill, particularly in the context of HIV/AIDS.
It is important to consider the abilities of PWAs in relation
to their health status. It must be remembered that an individual may
not always be able to work on IGAs due to poor health, and that it
may be necessary to supplement IGAs with welfare grants. Furthermore,
IGAs that involve the families and supporting communities of PWAs
will assist in the sustainability of IGAs during periods when people
are too ill to play a full part in an activity.
The integration of people who are not HIV positive, or whose
HIV status is not known into an economic activity may also be an opportunity
to increase the acceptance and integration within the local community
of PWAs.
Issues for Income Generation Activities
 |
Previous experience of IGA
management is essential. |
 |
The skills required are very
specific and critical to avoid wasting money and causing disappointment |
 |
The activity must be viable,
there must be a market and skills available. Seek proven expert
help to test these issues. |
 |
Activities have often centred
on women, which can lead to increased burden rather that self-reliance.
As with any programme every step of the planning and implementation
must be thought through. Again an external advisor with relevant
experience can help. |
,
The need for Good Management For work of any kind to be effective,
there is a fundamental need for good management. Without good management
a community's needs will not be heard and motivated volunteers or
the skills of professionals will be wasted.
Management includes many elements but two possible sub divisions
are; leadership and organising. ,
,
Organisation,
,
Information is important at each stage of the programme. To begin
with research and evaluation of the needs of the community in which
you wish to operate will give the basic information to form a plan
and develop an organisational structure. The continued gathering of
information will allow monitoring and the development of the work
Research issues
 |
What does the community say
is needed? |
 |
What do those with AIDS want? |
 |
What evidence is there for
this? |
 |
What resources are available
in the community? Are other resources required, how are they
to be obtained? |
 |
Does the church/organisation
want to meet the needs identified, do they sit well within
the ethos of the organisation? |
 |
Does the organisation have
the capacity in terms of personnel, structure and resources
to work with the community in combating HIV/AIDS and other
development issues? |
 |
Are there other organisations
that are already doing all or part of the work. If so, why
set up another organisation, will this not be wasting precious
resources? Or can you work in co-operation for increased effectiveness? |
 |
Visit other projects, utilise
proven methods and materials. Why reinvent the wheel? |
,
Planning
 |
Having identified answers to
the above it is important to set objectives with key indicators
i.e. measurements to monitor progress. Use SMART objectives:
specific, measurable, achievable, relevant, time-bound |
 |
Again those affected, community,
staff and volunteers should be involved. |
,
Monitoring
 |
Information should be gathered
and reviewed on a regular basis to monitor success or failure
to meet the goals. |
 |
Failure to meet certain goals
does not mean that the programme is not succeeding but could
mean some goals need to be altered. This should take place
in full consultation with staff, volunteers and the community.
What is important is the effectiveness of the work, not out
of date goals. |
 |
Review meetings should also
be held with those who receive the service, the community
and also with others working in the area. |
,
Organisational structure
 |
An organisational structure
should be prepared and made known to all in the organisation.
People benefit from knowing who they are responsible to. |
 |
If volunteers are to be used
ensure they are motivated |
 |
Employed staff should have
relevant experience and skills |
 |
Relevant initial training is
critical and should be followed by regular updates. |
 |
All staff, paid and volunteers
should have a support structure and receive regular appraisals,
with opportunity to comment and input to the development of
the organisation. |
 |
Clear and open financial management |
,
Leadership ,
,
Qualities in leadership
As stated above the most effective NGO responses to HIV/AIDS
have been by those organisations that have not only sought to co-operate
with the community, but have sought to serve. This serving of others
should be central to leadership. A leader who is humble and models
service will more likely produce a team and organisation that serves
others. ,
,
 |
When leaders and managers are
being selected it is good to look for proven leadership and
management experience, have they been effective in mobilising
others to achieve something effective? |
 |
A leader should focus on developing
quality relationships. relationships within and outside of
the organisation. With community leaders, PWAs, other organisations.
Good relationships with staff can be the basis for the development
of an effective team, of learning of new opportunities and
of learning about frustrations and barriers to effectiveness.
Ultimately the leader and the organisation are dependent on
the whole team. |
 |
Good relationships will allow
a leader to influence for the good and reduce the need for
over directing of staff. |
 |
Instead a leader will be facilitating
the skills and motivation of people to be utilised effectively. |
 |
There is a need for vision
from a leader, vision that is clear and understandable by
others. |
 |
The leader should have empathy
with people. The ability to put themselves "in the shoes"
of the people they lead. |
 |
An ability to understand (listen
and reflect) and be understood (communicate well) |
 |
A manager leader will require
accountability from their staff and they too must be accountable
to a governance board or committee. |
Ultimately in all Christian leadership
there should be the visible qualities of being Christ centred, biblical
thinking, humility, integrity and servanthood. These qualities are
more important that any technical skill or specific experience in
HIV/AIDS work. Such people can help facilitate communities and individuals
respond to HIV/AIDS.
Time for Action
Lists like the ones above can make people feel that they are
not qualified or they have nothing they can do themselves.
The MOST important thing of all is to DO SOMETHING. As
said before, it costs nothing to care, and you need no organising
to go and visit a neighbour in need, or to talk to your own relatives
about the risks of HIV, or indeed to lend someone this book, or to
get involved in an existing programme.
The battle against AIDS will not be won by great programmes.
It will be won as millions of ordinary men and women in every nation
rise up as a people movement, determined to take AIDS seriously and
to make a real difference. And as those who belong to Christ,
we have a message of strength and hope as well as of health and wholeness.
You can't change the whole world but today you can change
someone's world somewhere.
Introduction: Christians
are Leading the Fight Against AIDS - Chapter
1: AIDS is Your Problem Too - Chapter
2: Vaccines, Treatments and Condoms - Chapter
3: Agony AIDS - Questions People Ask Chapter
4: Nowhere to Go - Chapter
5: What Do You Think? - Chapter
6: Where Are You Going? - Finally:
Time for Action - ACET
International Alliance
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